University of Texas Health Northeast is hosting an educational event to support people suffering from cystic fibrosis, on Saturday, November 15. The regional Cystic Fibrosis Family Education Day is meant for caregivers and families of CF patients, since patients are vulnerable to bacteria that can be contracted through close contact with other CF patients.
The event will include a lecture by adult CF patient Kristin McFall, entitled “Thriving with Cystic Fibrosis, A Patient’s Perspective,” in which she will share her experience with the disease. The patient has been dedicated to providing support to other people that share her struggle, and has been traveling through the country to tell her story and encourage patients and families. During the educational day, other topics will be addressed, including nutrition, clinic research trials, and quality improvement initiatives.
Cystic fibrosis is a genetic, life-threatening condition that primarily affects the lungs and digestive system. It is diagnosed in about 30,000 people in the Unites States alone and 70,000 globally, and there is currently no cure. However, over the last 75 years, research into the disease and its treatments has greatly advanced leading to a dramatic increase in life expectancy. Therefore, the educational day is being organized based on the belief that not only new medications can make the difference, but also education.
UT Health Northeast is a CF Care Center accredited by the Cystic Fibrosis Foundation. Pediatric pulmonologist and director of the UT Health Cystic Fibrosis Center, Rodolfo Amaro-Galvez, stated that “as the only CF Center in our region, we are pleased to lead this effort to support and educate the caregivers and family members of both children and adults with cystic fibrosis.”
The Cystic Fibrosis Family Education Day will take place between 9 a.m. and 2 p.m., at the Academic Conference Center amphitheater on the UT Health Northeast campus. There is no cost to attend the event, but the number of seats is limited, so reservations are required by calling (903) 877-5271. In addition to the lectures, the event will also include a complimentary continental breakfast and a lunch.